The Hemophilia and Thrombosis Center of Nevada

2020 W. Palomino Lane Suite 110

Las Vegas, Nevada 89106

702-385-2702

since May 5, 2008

Last updated May 5, 2008

webmaster RIS

September 16, 2003 Meeting Minutes

Meeting Minutes for September 16, 2003

Location:          Cancer Consultant Office Board Room

Members Attending:     Liz White, Ted Marcoccia, Dane=lle Southern, Ken Cox, Sabrina Meyer, Melody Neely, Margie Martin, Mary Bobier, Dr. Shopnick.

Members Absent:         Cheryl Lawrence, Annise Bullock, Trish Eakin, Michele Shahar, Jeff and Kim Schrager.

I.          The meeting was called to order by Dr. Shopnick at 6pm. Dinner was sponsored by Dennis Gomez with Novo Nordisc. Previous minutes were read and approved.

            New member introductions made.

II.         Bylaws for becoming a member of HART was discussed and approved.

            Number of Board Members to be limited to current number of members on the board now. New members must be sponsored by a current member. Potential new members will be interviewed and voted on by current board members.

III.       Old Business:

            A.        Patient Assistance B

            Patient Assistance application forms are available in the office and on line. Only one individual inquired about the application and this individual lived out of state and was therefore no given an application.  There is $1000 in the checking account for use for this purpose.  No activity has occurred in this account.  Mary Bobier, Liz White, and Dr. Shopnick are signers on this account.  Two signatures are required for checks.

            Patient Assistance work group progress was reviewed. Transportation issues were addressed by Ted. EOB only provides transportation by contract only. They are not able to use a voucher system. Ted noted several buses that are no longer being used by EOB in the back. Ted will contact EOB to see about a bus being donated. We would need to evaluate liability issues regarding this if it becomes a reality.

            Pharmacy participation issues were addressed by Dane=lle. Her current District Manager was interested in the voucher system, however he has been promoted and she will have to start over with the new District Manager.

            Durable Medical Equipment was addressed by Liz. We currently do not have an application for use. Liz will address this and present it to the next meeting. Currently there are crutches available for loan. There has been no additional donations to this. It was asked whether there was a way to acquire equipment.  Danielle called a medical equipment store and they were no responsive.  Ken had discussed this with the Salvation Army, however since the fire, this is a moot point. 

            The Patient Assistance Group will meet at a later date to discuss outstanding items.

            B.         Education B

            There currently is HART letterhead and cards available for use for letter writing and other business.  This is available for any HART member in the treatment center office.

            Cheryl inquired as to whether we could participate in the back to school fairs.  She was told that our group was not appropriate for this role.

            At the pediatric clinic, the television news was present and we received some publicity.

            Margie Martin was asked to participate on this committee. She recommended that we address teaching in the school system.  She has done this in Pahrump at her school and has all the information ready for additional discussions.  This would be an excellent way to publicize our group, raise awareness among the community and also assist with school children that are affected with bleeding disorders.

            Mary will contact her friend Linda Goodridge to see if it would be possible to participate in the monthly teacher in-service programs within the Clark County School System to provide education for the teachers about student with bleeding disorders. Margie recommended a photo system to be given to teachers with children who are affected with bleeding disorders that would include what to do in case of injury and parent contact information. This could be closely coordinated with the school nurses.  Because of the frequent turnover in the school system, this program should be repeated annually.

            Margie also suggested education for the staff members of Child Haven or other state agencies that deal with children, the prison system, and participation in the health education at UNLV.

Public Education B

            Liz developed a promotional release to give to newspapers and TV stations to educate the public about HTCN events. Mary will assist in getting coverage before clinics and events several weeks before the events take place

            We briefly discussed the utility of attending health fairs.  This had been done in years past with Annise. We had poor response and the problem was in having persons to sit at the booth.  If this is an area of interest for HART, Dr. Shopnick can find where the health fairs are to be held.  It was recommended that perhaps we could get in on the health fair that they have for the new UNLV students so that we can discuss abnormal uterine bleeding with the female college students and awareness of von Willebrand=s disease.

            C.        Lobbying B

            Updated state and federal information on Nevada =s officials was made available to the board members along with a copy of a letter to be sent. The letter will be placed on HART letterhead and included on the HTCN web site and in the next newsletter. Mary will look in to the cost to become a lobbyist. We will find funds to send her to Carson City for this purpose.

            E.         Childcare B

            This topic was tabled until the next meeting due to the absence of Jeff and Kim Schrager who head that committee.

            F.         Winter Event B

            Negotiations are underway with the Harley Davidson Café. The tentative winter event date was set for Sunday, January 18^th. Several additional themes were discussed for the summer event. The Party Planning Committee will meet to evaluate them further in the near future.

            Cheryl spoke with Murder Mystery members and they will be willing to create a program that will involve HTCN patients and children.

            G.        Christmas Tree B

            The annual Christmas Tree at Opportunity Village was discussed. It was decided that we will not participate this year due to the price the tree doubling. Liz will investigate participation in the Village of Lights . Additional ways to help the local community were discussed. Margie suggested helping the local military family whose spouses are in Iraq .

IV.       New Business:

            A.        Insurance B

            This topic was tabled until the next meeting so that Liz could locate information that was sent in by Michele.

            B.         Fundraising B

            A new work group committee was suggested to evaluate the possibility of HTCN providing scholarships for HTCN patients. This committee will include Margie, Melody, Annise and Cheryl.

            Mary will forward information about Small Project Grants that may be available for the county. HART will apply for participation with Wild Oat 5% day. Dane=lle will contact her father=s car dealership for possible participation of donations of limited amount during a specific date of sale of cars.

V.        Next HART Meeting B

            The next board meeting was set for February 17, 2004 . The board decided to have meeting twice a year, with the work group committee=s meeting more often.

            The board adjourned at 7:30 pm

Send mail to rshtcn@aol.com with questions or comments about this web site.
Last modified: March 02, 2008